Lola's surgery is on the calender

Our youngest daughter Lola's cranial surgery has been scheduled for May 9, 2009 at Children's Hospital in Birmingham. That is a Wednesday. According to the doctors, we should be in the hospital 5 days the first of which will be in ICU.

Lola has unicoronal craniosynostosis, which means one of her coronal sutures (these run from ear to ear) in her skull has fused early. Surgery is required to correct this and prevent her skull from becoming even more misshapen, keep her mid-face from twisting and allow her brain to grow evenly.

We are getting more anxious about the operation because having an actual date marked on the calender makes it so much more real. She will be just a few days shy of 11 months old when the doctors perform the operation. I know babies much younger than her have had to have surgery, but this is different because it's my baby.

When we first discovered Lola had this condition, which affects about 1 in 2,500 children, we were terrified especially because we read online about babies who had multiple complications associated with craniosynostosis.

However, after meeting with Drs. John Grant III and John Wellons, who are wonderful by the way, we felt much more at ease. Dr. Grant, who is an internationally-recognized pediatric craniofacial plastic surgeon, has performed about 1,000 of these surgeries and made us feel immediately at ease with his gentle bedside manner and the matter-of-fact way he responded to our questions and concerns. Dr. Wellons, who is a neurosurgeon, also helped us to better understand Lola's condition and see that her case is unique to her and shouldn't be compared to other children who've also received this diagnosis.